Psychosis is a medical term to describe a mental illness which commonly includes a range of distressing symptoms such as hallucinations, delusions and paranoia. Coping with psychosis is often a challenging demand for the individual as well as everyone close to them, including family and friends. The term “carers” refers to people who provide caring support on an unpaid basis. Caring for a loved one affected by psychosis can be a daunting experience, but we know from previous research that information on the illness, coping strategies and opportunities to share experiences and support with other carers could help.
These are the impetus behind the EFFIP project. We are working toward developing and evaluating an online resource for carers, called COPe-support (Carers fOr People with Psychosis e-support resource). COPe-support is our online resource acronym and website domain name chosen by the many carers and people with lived experience of psychosis involved in the EFFIP project.
Where are we now?
Currently, during the evaluation phase, we are running a randomised controlled trial to evaluate how well COPe-support works to improve carers’ wellbeing and their coping with caring. More information on the study is available on the “Get involved” page.
Here are two papers we have published based on the results of the literature reviews we conducted earlier:
This project is funded by the National Institute for Health Research http://www.nihr.ac.uk/ (NIHR Post Doctoral Fellowship, Dr Jacqueline Sin, PDF-2015-08-035).
The views expressed in this website and related publications are those of the author(s) and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health.